B i L L F oO L e R Y
Essays, short stories, posts...

Song now playing: Moses
Artist: Patty Griffin
CD: Living With Ghosts

________________________________________________________

Patty Griffin
pattygriffin.jpg

Home | Photo page | Art & News Items | Helpful Links | More Cool Links | Music Venues | Bands, Musicians | Wally's Live Music Page | Essays, short stories, posts... | Contact Info. | Radio

My experience with Breast Cancer.
 
   I knew a woman who came to the US from Australia around 1980. She was born in Manila, Philippines in 1958 and migrated to Australia with her family at the age of 14. She got her education in Adelaide, AU and came to Los Angeles to get her RN and practise medicine.
   I met Kathy in 1990. At that time she was an RN at UCLA Medical Center in the Pediatric Oncology unit. Kathy was a tough, serious, no-nonsense type nurse who cared more about doing her job well and making the sick children well and comfortable than being liked by her peers. Her co-workers knew Kathy as a tough, good nurse who sometimes rubbed people the wrong way but her ability and professionalism was never questioned. She was respected by all levels of staff.
   Personally Kathy was a rebel when she had some time off. She liked white water rafting, roller coasters and straight talking people. When she was pissed off you knew it. A quiet calm preceeded a violent eruption. Her feelings were never left in doubt.
   Kathy married in her 30's and got pregnant at 35 years old. Late in her pregnancy Kathy found lumps in her breast that were diagnosed as calcium or milk related.
   Kathy's pregnancy had some issues but nothing serious and she gave birth to a daughter who was healthy. Kathy and husband were happy and optimistic.
   Soon after the birth a technician noticed something unusual and took another look at the biopsy and after another test it was determined that Kathy had breast cancer. Tests further revealed that it had spread to her lymph nodes and it was aggressive.
   The treatments were aggressive but nothing slowed down the progress of the little spots. It showed up in her lungs and some spots in her brain.
   After 13 or 14 months it was decided (by Dr. Susan Love, lead Oncologist at UCLA at the time) that a bone marrow transplant was the best course of action. No mastectomy had been recommended initially because it was Dr. Love's belief that since breast cancer rarely recurred in the breast it was not necessary to remove them.
   The bone marrow transplant seemed to go well. Kathy survived the high doses of chemo, she recovered and they sent her home.
   After a few weeks Kathy felt worse and one day she felt her blood pressure drop dramatically and she had herself brought to the ER.
   The diagnosis was unclear. It could have been spinal meninghitis so they treated her with antibiotics. Kathy's lung functions were depleting. The treatment was not working. Kathy was admitted to ICU and she gave orders to her husband and the the hospital staff to keep her "under".  She did not want to be conscious at all in ICU. The intubation made that a moot point. After two weeks in ICU Kathy passed  away. She was just shy of 36 years old. Kathy's daughter was then about 18 months old.
   It turned out that one of the side effects of one of the chemo-therapies that were administered during the stem-cell transplant had a side effect of causing fibrosis in the lungs. It also turned out that even the high dose chemo's did not slow down the aggressive cancer. It had spread even more as revealed by autopsy. The combination of her age which depletes the immune system and the presence of growth hormones from pregnancy caused the enviornment for aggressive cancer.
   In addition to those two risk factors her husband also believed it had to do with exposure to plastics in the microwave. It was Kathy's regular practise to bring frozen packs of rice to work for lunch. She would microwave the rice in baggies every day. This was her routine for approximately ten years.
   We don't know what causes cancer but we are learning some apparent risks.
   Kathy was my wife. I will pass on those theories of risks to my daughter as well as the legacy of a strong woman who came to this country, worked hard and made a good life only to lose it to the unforseeable. Lesson?
   Live each day. Know the risks. If you even think you want kids plan early and make it more important than career when the decisions arise. I know that is not politically correct. As I see it, it is a health issue. It is more noble to do the right thing for the child when there is a conflicting road.
   It has been twelve years since Kathy Pacis passed away and this is the first time I have told that story to anyone other than friends and family.
   I hope her story educates someone. As a medical professional she would have wanted to do that. This I know.
 
  

CHECK OUT THIS PIECE OF INSIGHT!!! CLICK HERE.

    Now and then, while journalizing my experiences as a fan of blues, I wonder about the motivations of we; those driven to blues.

   For me it seemed obvious. The motivation for my current involvement began immediately following the loss of a loved one. I was driving on a highway in Los Angeles in a blue funk of grief and I heard a song on the radio that spoke to me with a clarity I had not heard before in a song. Not only had I not heard an artist that clearly before but I had not been hearing anything at the time since my loss.

    Patty Griffin is more of a “folk” artist but the song and the CD are definite blues storyline and mood. The song was “Moses”, the CD was “Living With Ghosts”(scary ironic).. After hearing the song, gratefully, the radio jock did mention the title and artist. I ran to the store and bought the CD. I played it 24/7  for a while and it was cathartic in my grieving. One day while working in my shop with the artist in my walkman I felt a blockage pass or a connection, a rush of emotion and I fell to the ground and wept. I heard a voice that shared the very pain I was trying to hide. I began to feel more things from that moment. It gave me courage knowing that there were others with that pain and they were channeling it…sharing it…living with ghosts. I have been playing that CD ever since and looking for more that move me.

     Since I have not lost that pain of loss I suspect that other people (most people) that have experienced loss have the same need. Many have found the connection of music that echoes what they feel, hence; “blues”. The sound of many blues artists seems to appeal to many, even me before my loss. The added meaning just made it more…necessary for me. I am sure there are many artists, sensitive beings  that express pain that they experience through others and that they see around them. I was not “sensitive to “painful expression” until my personal experience. But since then I hear artists that express such emotion.  I hear it in Jimi Hendrix’s guitar as a matter of fact.  I hear it in Van Morrison’s voice, I hear it in Warren Haynes’s guitar, I hear it in Stevie Nick’s voice, Santana’s guitar, Jeff Beck, Duane Allman,  Maceo Parker. The list goes on and it is not all the definitive genre of “blues” as I typically think of it.… I hear it at times from local artists.

    For some reason the pitch and range of guitar finds the shortest route to my heart. But when anyone suggests that Hendrix’s expression is the result of drugs I tell them that the drugs may be part of the “instrument” but the expression was coming from the mans heart and he shared it and I heard it and thank God for him and all those out there trying to find their voice or with a voice and sharing their feelings with those who are needing it or still learning how.  I do not condone drug use but for those with the weakness and those with the ability to limit it, they can have times of well managed expression.

    Pain is part of the human experience and, like all other emotions it fosters expression. Like all other expressions of emotions ”blues” has beauty and meaning and at one time or another will be relevant to all of us.

The residents of Bay Shore may remember Eva Izak. Eva used to own and run The Painted Cupboard in Brightwaters. The Painted Cupboard was a gift shop/arts shop that was Eva’s painting skill on display. She was naturally gifted and her work was noteworthy for its originality and natural form…and beauty. I admired her skill and I enjoyed knowing Eva. I heard just the other day that Eva succumbed to cancer.

 

I feel compelled to say something about Eva. I met her when I decided to dabble in the arts. I am a local woodworker and I walked in to her shop and showed Eva a step stool I made and inquired whether she would be interested in using it as a canvas of sorts for her painting. I was trying to find out if I could make a living in the arts. Eva encouraged me and I have been making “crafts” my living ever since that day in 1997. I made a fast friend in that store and it became an important place that I needed to go to when I was feeling vulnerable in the lonely world of studio work. Eva was encouraging of me and my work. Eva was encouraging of art in this town and I was made to feel a part of it. Every town has its strengths (and weaknesses) and Bay Shore can be said to have a better-than-average community of arts. That was fostered by Eva Izak among others and I will miss her. I feel compelled to say that and pass on her legacy as I see it.

 

I did speak to Eva once while she was fighting cancer. I was moved by the strength and understanding in her voice. I was told by Eva of the severity of her cancer and yet our conversation was about a number of topics. Eva was living each day and had I had any idea of how few days she had left I would, of course, tried to say more, share more, be with her once more at least. Now that she is gone I regret not saying more, not saying thank you for her contribution to my life and for her friendship. Having lost a few people in my life (to cancer as a matter of fact) I can say that it has taught me to say more today, to do more today, to create in some way. Eva Izak was a teacher of that and a practitioner of that. She lived, created and left a positive message. I wish to express my condolence to the Izak family, my admiration and gratitude.

 

Anytime anyone refers to the arts in Bay Shore may they think of Eva and express her contribution.

short story(s) coming soon.

 

feel free to e-mail responses

Smart People.

 

    I know a lot of smart people. I have some in my family. I read the stuff smart people write and say in the media. I listen to them talk during my daily business. I get e-mails from them whether I like it or not. I open the pieces from people I know because, well, I guess I trust them. The time for that is running out. I am getting punchy when I open e-mails now. They contain little bombs, like viruses. People send these ideas for others to read that might justify their beliefs. The responses sometimes come back sometimes they don’t I imagine. Well, this is a response, in general, to the little  bombs people drop on me.

   We are a two party system. Most people feel the amount of government needed lies somewhere in between moderate Republicans and moderate Democrats.(see “bell curve”). That means there is a fine line between the two parties separated only by the word people use to register themselves to vote.

    These parties (political decision makers) think it works to demonize their political opponents for their own gain. They must think that their ideas about issues are pretty weak so they make the argument about the other party, in general. We, the people, seem to buy it.

     I heard people bash the president (pick any president) during his election. They bash him when he makes a decision. They bash him when he does not. They bash him when he makes a mistake. They deny when he does something right. When they think they hear enough people agree they rally and try to convince the country that the man is just bad. He is dumb or corrupt or both. He is everything bad and he does nothing right. It is a litany I hear from both groups all the time.

     I come to a TV channel and I see a politician talking and I know what he is going to say based on the name of the group he is a member of. I hear the question and I can predict the answer. Some say it with wit and charm, some have not learned that very well but they all toe the party line.

    Last night I was reading about a leading American practitioner of an eastern philosophy. I wanted to be inspired by his path to inner peace. He was even Ivy educated. He bashed a president on general terms. I had to re-read the article to make sure they were his words. A man of wisdom(?)! I hear ex-presidential candidates bashing leaders consistently along party lines. These guys wanted to lead a country!

    It is becoming clear that very few people in this world can see an idea, a person with an idea, or a person and think clearly about it/he/she without prejudice. These “smart” people think their bashing might be persuasive enough to convince me to bash with them. So many people try to get people to bash with them.

    This is a plea to those people to stop sending me your bashing crap. Send me anything that illustrates a novel idea, a behavior-changing idea, an idea that will convince people to stop thinking they are right all the time and anyone else is never right.

       I want to hear a smart person say something smart.

I hope you're coming back to New Orleans

By Rob Lepano

 

The Saints are back, the beignets are hot, and so is the music on Frenchman Street. Beads are being thrown on Bourbon Street, and the drinks are flowing. Nearly 700 of the best places to eat are open. 

 

So why haven’t you gone back yet?

 

It is truly a tale of two cities.  The French Quarter, Central Business District, and Garden District are all ready and waiting for you.  There is large-scale devastation in neighborhoods like Slidell and the Lower 9th Ward, to name a few.  These places may not be the same for years.  But the people--they are the most resilient and courageous I have seen.

 

Having traveled to New Orleans over sixteen times over the last six years, I have come to love the city and all the amazing people in it. They will rise again!

 

I had the great pleasure of being in New Orleans for the return of the New Orleans Saints and the reopening of the Superdome. It was truly a sight to see and hear. I don’t just mean the game, which was a 23-3 Saints victory over the Atlanta Falcons, nor do I mean seeing the popular rock bands U2 and Green Day playing with the Rebirth and New Birth Brass Bands.

 

I mean speaking to people who took a few hours out of a day of gutting their houses to come see a Saints game. Season ticket holders who were reunited with friends they had not seen since before Hurricane Katrina. And others, still, who had sought refuge in the Superdome during the storm and who just needed closure.

 

But there’s more to New Orleans than just football.

 

No trip to New Orleans is complete without enjoying a Hurricane on Bourbon Street, or a spicy plate of red beans and rice. No matter what your pleasure, there’s something for everyone in the heart of this great city.

 

Or you can take a trip a few blocks up to the hustle and bustle of Frenchman Street. A little more low-key than Bourbon Street – you won’t find beads or t-shirt shops here – Frenchman Street has a more relaxed atmosphere and some of the hottest music you’ll ever hear. For musicians or just music lovers, this is the place to be.

 

On any given night you can see Kermit Ruffins and the BBQ Swingers at Ray’s Room, Coco Robicheaux at the Apple Barrel, Charmaine Neville at Snug Harbor, or the New Orleans Jazz Vipers at the Spotted Cat, to name a few.

 

Where else in the world can you see a live Dixieland band, hop aboard a riverboat, visit an aquarium, and try your luck at the tables, all in one day with the night still to come? Nowhere but New Orleans.

 

So I hope you’re coming down to New Orleans. I’ve been back three times since Katrina, and I’ll be back in December again. Now it’s your turn.

 

 

 

--If you plan on going to New Orleans and would like to know a little bit more about where to go and what to do, feel free to email me at nolarob@gmail.com--

 

 

 

 

 

 

SOME POETIC CHIT CHAT BETWEEN H and B
 
"H":
Such stern seriousnesses
with green and grey,
bright green and bright grey.

All day long,
Forever!
At least twice.

Resusitate
the bottom of my foot with
pins.
I want to feel.
I want to remember how to feel
----------------------------------
"B":
As for feeling
start at your pin pricked feet
and think of that softest of softest and secretly delicate place
and that is a place to start...
 
In fact there you'll find me hiding since I was little...
in my private places
where even among the scary clamor
I could be no ones by mine.
breathing slowly, in a small space
waiting for...years to come.
---------------------------------------
"H":
It is the bottom of my shoe that I miss the most
after all these years
my bare feet flattenting against the cement

The things I pick up
with my toes

And the way old women ask me
for the name and brand
of paint.

My naive foot.
Watch out.
It kicks of its own accord.
 ----------------------------------
 
"B": 
Naivete' or your self unknown?
a foot is only a foot
An expression ,while not understood, is only that.
Why defame with ignorance instead of praising with rank vulgarity
 
The things you miss...
pieces of a puzzle to me..
body parts strewn in hospital waste
so meaningful yet so detached...
-------------------------------------------
"H":
My foot has a good deal to do with me
does it follow or does it lead?

An expressive nature by the color of its sock.
A choice, some say, as important as a peasant's smock.

They are hand knit, you know, by ten other digits.
Floundering in synchronicity, harmonious!

But they remind you of little piggies.
So you take them from me.

And redo them all up
To fit your own fancy.

You never wear them.  Just collect them.
Put them in your closet, all quiet, like
packets of jam and fright.




A place to exchange ideas about local performers, places and happenings.